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Establish a correct diagnosis, working in partnership with the Paediatric Neurologist
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Provide an ongoing epilepsy management plan including treatment
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To work in partnership with parents, children and young people at all times
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Offer support in the home environment
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Provide advice / information and counselling about epilepsy and treatments
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Provide Information on medication and side effects
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Provide nurse led clinics
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Provide information on safety, first aid and training on rescue medication
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Support in school (individualised care plans) and address any issue of concern (only with parental consent)
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Provide information on lifestyle issues
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Provide information about support groups and voluntary organisations
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Provide training and education to others involved in your care
Hope for Paediatric Epilepsy is a support group for parents with children and young people who have epilepsy.
The benefits
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Mutual support through contact with other parents of children and young people with epilepsy
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Building relationships
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Sharing and gaining knowledge and information
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Building confidence
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Sharing difficult and challenging situations can be encouraging (knowing that you are not alone!)
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Opportunities to help other parents and families
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The chance to influent service provision for children and young people with epilepsy within Tameside
The support group is an informal meeting for parents and carers. We occasionally invite different agencies and speakers to talk to us about all topics around childhood epilepsies.